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Atom | Rare Neurological Diseases Action Collaborative
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Rare Neurological Diseases Action Collaborative
Rolling Submissions
NASEM
Description
Informed by conversations in 2023 around challenges and opportunities in research and therapeutic development for rare neurological diseases, the Rare Neurological Diseases Action Collaborative was formed as an ad hoc activity under the auspices of the Forum on Neuroscience and Nervous System Disorders. Representatives from federal, clinical, academic, and pharmaceutical organizations will contribute to the action collaborative, which aims to foster collaboration and information-sharing among various partners and highlight paths...
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Eligible Applicants
- Unrestricted
Additional Eligibility Information
This is an action collaborative intended for representatives from federal, clinical, academic, and pharmaceutical organizations.
Funding Type
other
Categories of Funding Activity
- Health and Medicine
Grantor Contact Information
Kimberly Ogun, Telephone: (202) 334-3311
Grantor Email
kogun@nas.edu
Other Grantor Information
The National Academies of Sciences, Engineering, and Medicine are private, nonprofit institutions that provide independent, objective advice to inform policy with evidence, spark progress and innovation, and confront challenging issues for the benefit of society. They are comprised of three academies: the National Academy of Sciences, the National Academy of Engineering, and the National Academy of Medicine. The organization convenes hundreds of conferences, workshops, and symposia annually, bringing together leading experts from academia, public, and private sectors. Their work focuses on providing high-quality, evidence-based consensus on complex scientific, engineering, and health-related challenges. They produce peer-reviewed reports, publish scientific journals, and serve as a trusted source of expert advice for policymaking. The National Academies mobilize approximately 6,000 top experts each year who volunteer their time and knowledge to conduct policy studies, workshops, and other activities aimed at addressing critical issues facing the nation and world.
Additional Information
The collaborative may plan activities to amplify patient and families’ voices, enhance clinical trial design, and improve usage of patient-centered outcome measures, among others. Additional URLs: undefined
Supporting Link
https://www.nationalacademies.org/our-work/rare-neurological-diseases-action-collaborative
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