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    GREGoRi Data Coordination and Outreach Center (U01 Clinical Trials Not Allowed)

    This grant will fund a center to coordinate data, tools, and outreach for the GREGoRi program, advancing rare disease genetics research by sharing resources with the research community.

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    Funder: National Institutes of Health (NIH)

    Due Dates: November 4, 2025 (Estimated)

    Funding Amounts: Estimated total program funding: $2,000,000; 1 award expected; duration and ceiling not specified.

    Summary: Supports a Data Coordination and Outreach Center for the GREGoRi program, facilitating access to data, tools, and protocols for rare disease genomics research.

    Key Information: This is a forecasted opportunity; NOFO expected in 2025.


    Description

    The National Human Genome Research Institute (NHGRI), part of the NIH, is planning a new initiative to renew the Genomics Research to Elucidate the Genetics of Rare Disease (GREGoR) program with a focus on innovation (GREGoRi). This opportunity will establish a Data Coordination and Outreach Center, serving as the central hub for the GREGoRi Research Program. The Center will be responsible for ensuring that data, metadata, computational tools, and protocols developed by the GREGoRi consortium are broadly accessible to the research community. The initiative aims to accelerate rare disease diagnosis by advancing tools, molecular technologies, and analytical approaches for identifying causal genes or variants.


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