HD Human Experience Project
The HD Human Experience Project from the Huntington's Disease Society of America funds research on the lived experience and non-motor symptoms of Huntington's disease, focusing on patient-centered outcomes.
Funder: Huntington's Disease Society of America
Due Dates (Anticipated): May 2027: Letter of Intent (HD Human Experience Project, projected) | July 2027: Full proposal (by invitation, projected) | June 2027: Letter of Intent (historical cycle, projected) | August 2027: Full application (historical cycle, projected)
Funding Amounts: Up to $90,000 per year for 1–2 years; max $72,000 salary/fringe, $30,000 research costs/travel (no indirect/overhead).
Summary: Supports research on the lived experience and non-motor symptoms of Huntington's disease, prioritizing active human participation and patient-centered outcomes.
Key Information: This is a forecasted opportunity; all dates are projected and subject to change.
Description
The HD Human Experience Project, launched by the Huntington's Disease Society of America (HDSA), funds research dedicated to understanding and improving the daily lives of people living with Huntington's disease (HD), with a particular focus on cognitive, psychiatric, and behavioral symptoms such as anxiety, depression, and emotional regulation. The program aims to fill gaps in evidence-based care, rehabilitation, and support for people with HD, especially as new therapies emerge. Projects must place active human participants at the center of the research, emphasizing interventions and patient-centered outcomes. This initiative responds to findings from the HDSA’s Voice of the Patient Report, prioritizing studies that can tangibly improve quality of life for those affected by HD.
