Hereditary Hemorrhagic Telangiectasia (HHT) Center
Forecasted
This grant aims to improve care access & coordination for Hereditary Hemorrhagic Telangiectasia (HHT) patients and create a data registry to study the disease.
This grant was recently cancelled by Health Resources and Services Administration
Funder: Health Resources and Services Administration
Due Dates: June 20, 2025 (Close Date)
Funding Amounts: Cooperative agreement; award amount not specified.
Summary: Supports improved care access and coordination for HHT patients and the creation of a de-identified patient data registry to advance understanding and treatment of this rare disease.
Description
This opportunity, offered by the Health Resources and Services Administration (HRSA), aims to reduce morbidity and mortality associated with Hereditary Hemorrhagic Telangiectasia (HHT), a rare genetic disorder. The program has two primary objectives:
- Expand access to and coordination of care for HHT patients.
- Develop a de-identified, aggregate patient data registry to improve understanding of HHT and treatment outcomes.
The cooperative agreement is designed to support organizations or consortia that can serve as a national resource for HHT care, data collection, and dissemination of best practices.
