Ipsen-RFP-Rare Liver-Early Sreening_2026-09
Ipsen-RFP-Rare Liver-Early Sreening_2026-09 supports independent education for U.S. healthcare professionals on Alagille syndrome family screening and early identification to help address gaps in care.
Funder: Ipsen
Due Dates: October 20, 2026 (submission deadline)
Funding Amounts: Up to $250,000 from Ipsen; enduring component active for at least 12 months
Summary: Supports independent U.S. medical education on family screening and early identification in Alagille syndrome.
Key Information: Individuals, healthcare provider practice groups and clinics, managed care organizations, and pharmacy benefit managers cannot apply.
Description
Ipsen seeks proposals for independent medical education that helps healthcare professionals identify and address gaps in family screening for Alagille syndrome (ALGS). The program aims to improve understanding of ALGS inheritance and genetics, recognition of the clinical implications of variable expressivity and reduced penetrance, and use of current practices for genetic counseling and family risk assessment. It also seeks education on communicating with families about genetic testing and screening.
This request is part of Ipsen’s medical education grants program, which supports projects addressing unmet educational needs and intended to improve patient outcomes. Proposals may use live or online education and should reach pediatric primary care providers, neonatologists, pediatric hospitalists, pediatric hepatologists, pediatric gastroenterologists, and advanced practice providers. The requester retains responsibility for designing and conducting the independent project.
