Promoting Resources and Opportunities for People with Autism and Fragile X and their Families Across the Lifespan
This grant funds research and outreach to better understand and improve services, supports, and long-term outcomes for people with autism or Fragile X Syndrome and their families throughout their lives.
Funder: Centers for Disease Control - NCBDDD
Due Dates: June 1, 2026 (Optional letter of intent) | June 15, 2026 (Full application, 11:59 p.m. ET)
Funding Amounts: Up to $18,000,000 total over 5 years; individual awards range by component: $230,000–$650,000/year (Component A), ~$333,333/year (Component B), $200,000/year (Component C).
Summary: Supports research, data collection, and dissemination to improve resources, services, and outcomes for people with autism or Fragile X syndrome (FXS) and their families across the lifespan.
Key Information: Applicants must meet strict data access requirements for each component; see eligibility details below.
Description
This funding opportunity from the CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) aims to advance understanding and support for people with autism or Fragile X syndrome (FXS) and their families throughout the lifespan. The program is divided into three components:
- Component A (SPROUT): Collects and analyzes survey data from adolescents and young adults with autism (and their caregivers) previously enrolled in the Study to Explore Early Development (SEED).
- Component B (FAST FORWARD): Gathers clinical and survey data from children, adolescents, and adults (ages 0–40) with FXS to inform support and transition needs.
- Component C: Focuses on developing, disseminating, and evaluating evidence-based resources for people with FXS, their families, and healthcare providers nationwide.
The overarching goal is to identify and address resource gaps, reduce morbidity and mortality, and improve health, education, and social outcomes for these populations.
