Sickle Cell Disease Regional Care Excellence (SoRCE) Program
This program funds seven regional hubs to expand and improve care for people with sickle cell disease by partnering locally and tracking quality of life outcomes.
Funder: Health Resources and Services Administration
Due Dates: July 8, 2026
Funding Amounts: Up to $950,000 per award per year; estimated total program funding $6,650,000; project period up to 4 years.
Summary: Supports regional hubs to expand access, improve quality, and track outcomes for sickle cell disease care through coordinated networks.
Description
The Sickle Cell Disease Regional Care Excellence (SoRCE) Program funds seven Regional Coordinating Hubs (RCHs) across the U.S., each responsible for building and leading a network to improve outcomes for people with sickle cell disease (SCD). The program’s primary aims are to expand access to care, improve care quality, and track quality-of-life indicators for individuals with SCD. RCHs must partner with at least three Clinical-Community Spokes (CCSs)—each a collaboration between a clinical center and a community-based organization—to deliver comprehensive, regionally coordinated services and continuous quality improvement initiatives.
Key goals include:
- Serving at least 30% of people with SCD in the region.
- Increasing the proportion of eligible individuals receiving disease-modifying therapies by 5% compared to baseline.
- Collecting and reporting annual data on emergency department usage and high school graduation rates among those served.
Applicants may also request supplemental funding (up to $250,000 for one year) to address emerging issues in SCD care.
