[Health Resources and Services Administration](https://www.hrsa.gov)

June 20, 2025 (Close Date)

Cooperative agreement; award amount not specified.

Supports improved care access and coordination for HHT patients and the creation of a de-identified patient data registry to advance understanding and treatment of this rare disease.

--- ## Description This opportunity, offered by the Health Resources and Services Administration (HRSA), aims to reduce morbidity and mortality associated with Hereditary Hemorrhagic Telangiectasia (HHT), a rare genetic disorder. The program has two primary objectives: - Expand access to and coordination of care for HHT patients. - Develop a de-identified, aggregate patient data registry to improve understanding of HHT and treatment outcomes. The cooperative agreement is designed to support organizations or consortia that can serve as a national resource for HHT care, data collection, and dissemination of best practices. --- ## Due Dates - Application Close Date: **June 20, 2025** --- ## Funding Amount - Funding mechanism: Cooperative agreement. - Award amount: Not specified in the available documentation. - Duration: Not specified; refer to the official opportunity for details. --- ## Eligibility - Eligible applicants are typically organizations with experience in rare disease care coordination, data registry development, or related health services. - Specific eligibility criteria are not detailed in the provided materials; applicants should consult the official [Grants.gov opportunity page](https://www.grants.gov/search-results-detail/355641) for full requirements. --- ## Application Process - Applications must be submitted via [Grants.gov](https://www.grants.gov/search-results-detail/355641) by the close date. - Review the full funding announcement and application instructions on the Grants.gov listing. - Prepare materials demonstrating capacity for care coordination, registry development, and national leadership in HHT. --- ## Additional Information - The program is intended to serve as a national center or network for HHT, with a strong emphasis on data-driven improvement of care and outcomes. - The registry must be de-identified and aggregate, supporting research and quality improvement while protecting patient privacy. --- ## External Links - [HRSA Home Page](https://www.hrsa.gov) - [Official Grants.gov Opportunity Listing](https://www.grants.gov/search-results-detail/355641) --- ## Contact Information | Contact Type | Details | |--------------|---------| | General Inquiries | [press@hrsa.gov](mailto:press@hrsa.gov) | | Phone | (800)-221-9393 | | HRSA Contact Page | [https://www.hrsa.gov/about/contact](https://www.hrsa.gov/about/contact) |

Hereditary Hemorrhagic Telangiectasia (HHT) Center

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