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    Rare Liver Diagnostic Recognition

    Rare Liver Diagnostic Recognition supports independent U.S. educators in teaching pediatric healthcare professionals to recognize and diagnose PFIC and Alagille syndrome earlier, reducing delays in care.

    Funder: Ipsen

    Due Dates: October 20, 2026 (submission deadline)

    Funding Amounts: Up to $250,000 from Ipsen; enduring component active for at least 12 months

    Summary: Supports independent U.S. medical education on earlier recognition and diagnosis of genetic cholestatic liver disease.

    Key Information: Individuals and healthcare provider practice groups cannot apply.


    Description

    Ipsen seeks proposals for independent medical education that helps healthcare professionals recognize Progressive Familial Intrahepatic Cholestasis (PFIC) and Alagille syndrome (ALGS) earlier. Programs should improve recognition of signs, symptoms, and diagnostic red flags; promote evidence-based diagnostic pathways; and reduce delays between symptom onset, specialist referral, and definitive diagnosis.

    This U.S.-focused request accepts live or online education aimed at pediatric primary care providers, neonatologists, pediatric hospitalists, pediatric hepatologists, pediatric gastroenterologists, and advanced practice providers. Ipsen funds independent projects addressing unmet educational needs and intended to improve patient outcomes. The grant recipient is responsible for the program’s design, implementation, and conduct; Ipsen must not influence the project.


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