PFF Registry Ancillary Studies
PFF Registry Ancillary Studies supports clinical and translational investigators with Registry data, biosamples, and scans to understand pulmonary fibrosis and interstitial lung disease and improve care.
Funder: Pulmonary Fibrosis Foundation
Due Dates: 10 business days before needed (letters of support) | 10 business days before deadline (abstract review) | 15 business days for manuscript review
Funding Amounts: Registry data, biosamples, and HRCT access rather than a cash grant; access and service fees may apply
Summary: Supports clinical and translational research using Registry resources to understand pulmonary fibrosis and interstitial lung disease and improve care.
Key Information: Academic and industry investigators may apply without a PFF Care Center Network partner, but unpartnered access requires a fee.
Description
The Pulmonary Fibrosis Foundation (PFF) Registry Ancillary Studies program provides clinical and translational investigators with access to deidentified clinical data, biosamples, and high-resolution computed tomography (HRCT) scans. Information gathered from thousands of participants supports research into the causes and impacts of pulmonary fibrosis (PF) and interstitial lung disease (ILD), treatment outcomes, and clinical care. The Registry also assists with clinical trial recruitment.
Research using these resources aims to deepen understanding of PF pathobiology, develop clinically actionable biomarkers, and identify new therapeutic targets. Longitudinal data can generate real-world evidence to inform clinical decision making, future trial design, and therapeutic strategies. Investigators in academia and industry can propose ancillary studies, with proposals assessed by the PFF Registry Scientific Review Committee.
