Friends of FSH Research’s Research Funding Grants support impactful scientific projects advancing understanding and treatment of FSHD, emphasizing clear aims, innovation, and public engagement.
Funder: Friends of FSH Research
Due Dates: Typically Fall (RFP deadline announced annually); rolling for Flex Grants
Funding Amounts: Most awards range from $50,000–$100,000; project duration typically 1–2 years, with some flexibility
Summary: Supports innovative research advancing understanding and treatment options for facioscapulohumeral muscular dystrophy (FSHD).
Key Information: Full proposals accepted by invitation after initial email inquiry; no indirect costs allowed.
Friends of FSH Research provides competitive grants to support impactful scientific research focused on facioscapulohumeral muscular dystrophy (FSHD). Grants are designed to advance both fundamental knowledge and treatment options for FSHD, with a strong emphasis on clear aims, measurable deliverables, and meaningful impact. The program encourages early communication with applicants to streamline the proposal process and values lay summaries to connect funded research to its donor community and the public. Funding is available for both investigator-initiated projects and smaller, ad hoc Flex Fund grants for specific research needs.