Research Funding Grants
Forecasted
Research Funding Grants support investigators conducting FSHD studies, funding projects with defined aims, experiments, and milestones to accelerate discoveries toward a treatment or cure.
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Funder: Friends of FSH Research
Due Dates (Anticipated): November 2026 (Fall RFP application deadline)
Funding Amounts: Most grants: $50,000–$100,000; typically 1–2 years; no indirect costs
Summary: Supports investigator-initiated FSHD research with defined aims, experiments, milestones, and deliverables toward a treatment or cure.
Key Information: Funding is by invitation following an RFP; contact Friends before preparing a full proposal.
Description
Friends of FSH Research funds scientific studies of facioscapulohumeral muscular dystrophy (FSHD) to accelerate discoveries leading to a treatment or cure. Its investigator-initiated grants support specific research projects from academic and industry laboratories, including work led by principal investigators, postdoctoral fellows, and graduate students. The organization's 2016 Portland Summit continues to inform its requests for proposals and research priorities.
Proposals should connect preliminary data and scientific rationale to experiments, milestones, and deliverables. The Scientific Advisory Board discusses research priorities, funded-project updates, and new proposals once or twice annually, depending on the available budget. These research grants are distinct from the separate Flex Grant Program, which supports smaller or ad hoc research needs that may not be tied to a specific project.
