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    Undiagnosed Diseases Network (UDN) Clinical and Data Coordinating Center

    Forecasted

    This grant will fund a center to coordinate patient support, data management, research, and collaboration for advancing diagnosis and care of individuals with undiagnosed diseases through the Undiagnosed Diseases Network.

    Funder: National Institutes of Health

    Due Dates (Anticipated): May 2027 (anticipated)

    Funding Amounts: Not yet specified; details expected in official solicitation

    Summary: Supports a Clinical and Data Coordinating Center for the Undiagnosed Diseases Network, advancing diagnosis and research for undiagnosed diseases through operational oversight, data management, and network coordination.

    Key Information: This is a forecasted opportunity; applications are not yet being solicited.


    Description

    The National Institutes of Health (NIH), through the National Institute of Neurological Disorders and Stroke (NINDS), intends to support the next phase of the Undiagnosed Diseases Network (UDN) by funding a Clinical and Data Coordinating Center (CDCC). The CDCC will provide operational oversight, participant and provider engagement, data management, protocol and regulatory support, innovation in analytics, collaboration, and training for the UDN. The center will also facilitate the systematic re-evaluation of unsolved cases, support quality oversight, and help implement advanced diagnostic approaches into mainstream medical care. The opportunity is currently forecasted to allow potential applicants to plan and develop collaborations in anticipation of the official solicitation.


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