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    Batten Disease Global Research Initiative Grant Program

    Forecasted

    The Batten Disease Global Research Initiative Grant Program funds international research to advance therapies, diagnostics, and scientific understanding of Batten disease, led by the Batten Disease Support & Research Association.

    Funder: Batten Disease Support & Research Association

    Due Dates (Anticipated): December 2026 (Expressions of Interest close) | May 2027 (Full Proposal Submissions close)

    Funding Amounts: Up to $50,000 USD per project for one year (renewal possible); exceptional cases may receive more if justified.

    Summary: Supports innovative global research to advance therapies, diagnostics, and care for all forms of Batten disease (NCLs).

    Key Information: Two-stage process: Expression of Interest followed by invited full proposal; open to academic and industry-academic teams worldwide.


    Description

    The Batten Disease Global Research Initiative Grant Program, led by the Batten Disease Support & Research Association (BDSRA) and global partners, funds pioneering research aimed at improving outcomes for individuals with Batten disease (Neuronal Ceroid Lipofuscinoses, NCLs). The program focuses on accelerating gene-targeted therapies, identifying reliable biomarkers, understanding disease mechanisms and impact beyond the central nervous system, enhancing early diagnosis, and optimizing clinical trial design and care strategies. By fostering international collaboration, the program seeks to drive scientific breakthroughs that can be translated into improved therapies, diagnostics, and quality of life for patients and families worldwide.


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