Batten Disease Global Research Initiative Grant Program supports researchers worldwide studying all forms of Batten disease to advance therapies, diagnosis, care, and quality of life.
The 2026–27 round is now open for online EOIs, due December 14, 2026, at 11:59 PM PST, replacing the December-only deadline. Invited full proposals are due June 2, 2027, at 11:59 PM PDT instead of May 2027; requests above $50,000 now require compelling scientific rationale and budget justification.
BDCRC Pilot Project Award supports researchers studying Batten disease in humans or human-derived biospecimens to advance therapies, improve diagnosis and care, and enhance patient quality of life.
The Investor-Initiated Research Grants from Beyond Batten Disease Foundation fund global research to advance understanding and treatment of juvenile Batten (CLN3) disease.
The Research Initiative Program by NTSAD funds research to advance understanding and treatment of Tay-Sachs, Canavan, GM1, and Sandhoff diseases through innovative science and collaboration.
2027 BSF Grant Program supports young and established investigators with seed funding for Barth syndrome research to advance understanding or treatment and generate data for follow-on funding.
Cure LGS 365 Research Grants support researchers conducting basic, translational, and clinical studies to close gaps in Lennox-Gastaut Syndrome knowledge, develop therapies, and improve patient care.